Harmonized outcome measures for use in asthma patient registries and clinical practice

RE Gliklich, M Castro, MB Leavy, VG Press… - Journal of Allergy and …, 2019 - Elsevier
Background Asthma, a common chronic airway disorder, affects an estimated 25 million
persons in the United States and 330 million persons worldwide. Although many asthma
patient registries exist, the ability to link and compare data across registries is hindered by a
lack of harmonization in the outcome measures collected by each registry. Objectives The
purpose of this project was to develop a minimum set of patient-and provider-relevant
standardized outcome measures that could be collected in asthma patient registries and …